Happy 2nd Birthday!

07-18-14. Happy Birthday #2

Two years ago today my human, CC had surgery and I was created!  Yippiee!

For my birthday, I got to try a brand new bag!  We got some samples of the new Coloplast SenSura® Mio pouch so we’re trying it out.  This is my first time with a 2-piece system as well.

After a few days, I’ll give you my opinion but right now I need to have some cake!

 

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All Colons go to Heaven

All Intestines Go to Heaven

Two years ago Friday, my friend Colon went to heaven.  Today we remove our hats to remember this large intestine.  RIP Colon.

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IBD Fatigue

06-21-14. IBD Fatigue

Today we’re trying to take over Twitter raising awareness for one of the symptoms of IBD: FATIGUE!!!

It’s probably one of the least understood symptoms by non-IBDers who can’t quite grasp why you just can’t get out of bed or don’t have the energy to run out with your friends after work.

It is the part of the disease that drains just about all human-essence from your bones and leaves you a heap on the floor.

So, help join awareness and tweet #GetYourBellyOut today with a photo you think best shows your IBD Fatigue.

Here is mine…

943338_10201190983353809_1786208799_n I see you…but I’m still not getting out of bed!

@mrstomarocks

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Mr. Stoma Universe

So, my human has been telling me that we need to start working out and getting in better shape.

So, I told her that I thought I looked like this:

Body Building-2But, she assured me that this was NOT the current look.  For several reasons, the primary one being my human is female.  Details…details…

She said that we weren’t going to be entering any pageants, but being able to walk up several flights of stairs without sounding like a malfunctioning vacuum cleaner would be good.

So, apparently the plan is to be off to something called the gym in the morning.  I’m not sure how I feel about this.  And I’m still fairly sure I should look like the picture above.  😉

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Remicade Nap Time!

Remicade Nap. 06-11-14

One of the benefits of Remicade infusions is getting to take a nap in the middle of the day.

Because naps are AWESOME!

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Boils Suck!

04-07-14. Boils

Boils?!?  Seriously who the heck get boils?  My body has gone all biblical on me.  Next I know I’ll be sneezing locusts.

Since one of the fun side-effects of the medicine to keep her Crohn’s Disease from wreaking havoc in her digestive system is a decreased immune system, her body has decided that it would be fun to start having recurring boils.

Fun times.  Because we didn’t have enough doctors on speed dial…

 

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Fix-A-Flat

01-10-14. Fix-a-Flat

 

Happy New Year!

Today we got to experience something new.  A leak!  OK, well, a leak isn’t new but this particular one is.  There is apparently a pin-prick sized hole in the shiny new bag I got this morning.

My human found out in the best way possible since the only stuff that had leaked out was bag lubricant (because I like smelling powder fresh).

So, what we need is a Fix-a-Flat product, just like for tires, except this will plug up holes in ostomy bags?  What do you think?  

We could call it “Patch-A-Pouch”!

 

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Crohn’s Disease makes me…

12-03-13. How it feels

 

 

 

 

Help support Crohn’s & Colitis research & support at Mr. Stoma’s Fundraising Page!
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Time for Hugs!

12-02-13. Crohnie Hug

 

Just don’t hug too hard…you don’t know what might come out!

December 1 – 7, 2013 is Crohn’s & Colitis Awareness Week!  

What is Crohn’s & Colitis?  Known collectively as inflammatory bowel diseases, Crohn’s disease and ulcerative colitis affects 1 in 200 people in the United States. They are painful, medically incurable diseases that attack the digestive system. Crohn’s disease may attack anywhere along the digestive track, while ulcerative colitis inflames only the large intestine (colon). Symptoms may include abdominal pain, persistent diarrhea, rectal bleeding, fever and weight loss. Many patients require numerous hospitalizations and surgery.  The estimated direct cost for all patients with inflammatory bowel diseases (IBD) in the US is $1.84 billion. 

I have started a fundraising page to help raise money for the Crohn’s & Colitis Foundation of America (CCFA).  If you can, please give even a little bit to help support this great organization in its pursuit to find a cure for Crohn’s Disease and Ulcerative Colitis and to improve the quality of life for those affected by these diseases!

Please go to: fundraise.ccfa.org/mrstoma to help!

Information above from the Crohn’s & Colitis Foundation of America: www.ccfa.org

 

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Poppies!

10-29-13. Poppy seeds

 

You don’t really realize how many poppy seeds are actually in those muffins until you have an ostomy.

Holy cow!

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