Tag Archives: Crohn’s Disease

It’s Been A While!

Oh, where to begin… 2016 was…problematic. It started off with more blockages.  Boo!  But this time it wasn’t related to hernias.  Turns out I had developed antibodies to Humira and my Crohn’s was kicking my ass and had narrowed a … Continue reading

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Holy Bloated Bags, Batman!!!

This morning there was nearly a ‘shit’astrophe. My dear human turned off her 2am alarm in her sleep.  Which she should never, ever do again when she eats Mexican food for a late dinner. Luckily, our subconscious kicked in around … Continue reading

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Blockages & Hernias, Oh My!

So, a couple weeks ago we ended up with ANOTHER blockage which sent us to the ER and another 4 day hospital stay.  Needless to say, we were unamused. After the blockage in January, they told us the CT scan showed … Continue reading

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BEWARE: Spaghetti Squash

So, this has been an “exciting” week for CC and I.  Last week she ate some spaghetti squash.  Apparently, too much spaghetti squash.  Which caused a visit to the ER for pain meds (thank you Mr. Morphine) and a CT … Continue reading

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Peas: The Ostomate’s Bubblewrap

Green Peas are the ostomate’s bubble wrap! It’s totally disgusting but you just cannot help yourself.  You have to pop the peas in the pouch! CC’s husband-creature tells her she is totally weird for doing this (it might also be … Continue reading

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Crohn’s & Colitis Patient Education Day

This morning we attended the Crohn’s & Colitis Foundation of America (CCFA) Patient Education Day at the University of NC – Chapel Hill. Lots of fantastic information was presented by the UNC Center for Inflammatory Bowel Diseases including information about vaccinations … Continue reading

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We need a new hobby

CC’s husband declared the other day that we need a new hobby.  The getting random sickness that baffles the doctors is getting a bit old. For the past couple weeks, CC has been really sick with ulcerations in her lower … Continue reading

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Remicade Tea

Today is infusion day and it is also CC’s birthday!  So Happy Birthday to my human! Some folks were surprised for scheduling an infusion on her birthday, but she said it was OK because she got out of work for … Continue reading

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Looking at the 2-Piece Sensura Mio

  CC tells me that the above illustration is not the kind of 2-piece we are talking about. Recently, we were sent samples of the new Coloplast SenSura® Mio pouch.  We decided to try some samples in the two-piece variety … Continue reading

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Happy 2nd Birthday!

Two years ago today my human, CC had surgery and I was created!  Yippiee! For my birthday, I got to try a brand new bag!  We got some samples of the new Coloplast SenSura® Mio pouch so we’re trying it out. … Continue reading

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